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Wednesday, June 27th 2007

6:38 AM

Hump Day

Well I haven't done good in daily postings. I never could keep a journal either for the same reason, it's hard for me to put my thoughts down on a daily basis.

Woke up in a little less pain than usual, the rain has cleared up momoentarily giving me a respite.

Went to my first Cancer Clinic visit in a year and half. I have polycythemia vera and I was shocked and dismayed that the head of the clinic told me he didn't want to give me the necessary treatment for my illness because I smoked. Last I checked this is still America and that's one civil right Bushe hasn't taken away yet: legally they MUST treat me. MY personal habits are my business and my disease has been proven not to be caused by smoking by tests and 5 years of not smoking when my condition got 3X worse. My hands swelled up so bad they looked like they would burst. I won the debate, because I was right, and he ordered a phlebotomy andthey took 2 pints of blood from me, but he didn't order an immediate follow-up to take labs and check my hematocrit to see if the phlebs worked. That is protocol and now I'm writing his boss to inform him of the gross negligence and arrogance this doctor displayed towards me. I am professioanl and calm myself the situation did not warrant his behavior towards me at all. I get along great with my other doctors, in fact they vociferiously appreciate my self education about my body. They get tired of dummies who come in and are not active participants in thier own helath care regimen. I am very much self involved, it's my body after all. I better know as much as I ca, I'm too sick not too. I want to get better. And I can, with proper medicalcare.

No one showed up for our first meeting. I kind of expected that although I did hope someone would. I just have not got the word out enough. I'm working on the doctors now, tht is my best bet since gastros handle HCV and have a lot of heppers for patients.

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